Last year I went to my first Take Steps for Crohn’s & Colitis event. I was invited by my super cool Gastro and thought it sounded like a fun thing to try. Why not?
In fact it was so great that I immediately began looking forward to going again.
The first thing I did was look for the sign in booth. Before I even got to the table I met a super nice lady who saw my Ask Me shirt and we got to chatting. She excitedly told me about her Ostomy experience and shared her enthusiasm for upcoming treatments. How about that for an awesome welcome?! I love my IBD community.
Anyhoo, I got signed in and went straight for the booths. I didn’t spend enough time investigating them last year and felt like I missed out. So off I went.
*Going for big pics so you can see all the goodness as I walk you through a photo tour of the event.*
The first booth was for a pharmaceutical company.
Their motto is ‘Medicine on the body’s own terms’. They work to create individualized treatments with less side effects. My hope is in time this will be available to everyone at an affordable cost. How cool would that be? That’s their goal as well. I can’t wait to see it.
The next booth was MotherToBaby. They offer support for women on IBD controlling medications who are looking towards pregnancy and breast feeding. There are legitimate concerns about safety for mother and child when taking meds. MotherToBaby helps answer those important questions.
Then there was the MPA Event Graphics booth with the bright sign that drew me in.
Next there was Coastal Gastroenterology, a local Gastro clinic with a super joyful group of people.
There were larger medical groups as well. UC San Diego has an IBD Center with a focus on patient education and empowerment.
There were some drug reps.
This one is for CIMZIA. They have a nifty delivery system, after initial dosing it can be done by the IBDer in their own home. There’s help available for those who cannot inject themselves. I was most impressed by the pro human side of it. Trying to really make it as easy and inobtrusive in a persons life as possible, while still providing a high level of care. The rep was very good.
This booth was for REMICADE but the gentleman never really pushed or pressed that Remicade is the very best drug. (Some drug companies do that silly stuff ~ can you believe it?!) He encouraged a conversation to happen between the IBDer and their gastro. (Which I respect) What he did highlight was the cost assistance program they offer. So of course I grabbed a packet to show you, my Sweethearts. He also stressed the fact that every costly med out there has an affordability program. The IBDer just needs to know to ask.
Now you know.
Loved talking to the researchers. So passionate, intelligent and personable. Join research or take part in a study if you can. Researchers and scientists power to understand IBD and find a cure lies in our willingness to participate. We are the key to helping our own future.
Take Steps CCFA SWAG. Woo Hoo! Totally filling this bag with a snack, sunscreen and a towel then heading to my favorite beach.
Then came time for the fund raising announcements and listening to the stories of some pretty remarkable IBDers.
Mikes presentation on stage was positive, informative and kept the ball rolling towards the true purpose of the event. The fearless announcer was both entertaining and endearing as he highlighted the efforts of those in the community. A job well done.
After the stage presentation it was time for the walk. This is where I got to visit with all the people. My very favorite part! Everyone I spoke to was an example of inspiration, strength, courage and love. I love my IBD community!
Before you knew it the event was wrapping up.
Thank you CCFA for the Take Steps experience. My family and I look forward to participating next year.