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CCFA

CCFA Fundraising Through Spin

This past weekend my super cool Gastroenterologist invited me to participate in a spin like Soul Cycle Crohn’s & Colitis Foundation of America fund raiser.

First off I was sold on the description of ‘Party on a Bike’ and something about glow sticks. ‘Scuse me, but glow sticks automatically raise the fun level of any event and ‘party’ equals good music.

All to benefit the CCFA? I love the CCFA!

This whole thing sounded like fun before I even got there.

Heck YES! Count me in.

So after a quick online registration to reserve my spot and prompt RSVP, I Googled what I had gotten myself into.

Indoor Cycling.  Thanks Wikipedia.

Oh yah, I can do this!

My plan was to go and have fun, but pace myself so I didn’t end up falling off the bike in a pile of limp sweaty exhaustion, promptly followed by barfing on the floor.
Reachable goals ~ I can manage that.

The ride itself was held at The Rush Studio in Carmel Valley.  A lovely location with friendly staff not too far from the beach.

I arrived a tad early to a bright, welcoming atmosphere where already jazzed people were visiting, contributing to the donation box and signing up for the raffle. Everyone was excited about the ride, seeing each other and supporting the CCFA. The ladies at the front desk helped me out with paperwork and shoes. In no time I was off to make my own donation, visit and get bedazzled with fancy glow accessories. I can see why people like to come to The Rush. It’s the perfect setting.

After stowing my back pack it was time to grab towels and water bottle then head on in.

As I was a rookie, I chose a spot in the second row next to a gentleman in a white shirt which I was hoping would glimmer under the black lights. Decked out in CCFA orange and blue glow necklace and bracelets, I familiarized myself with the bike and looked around pleased to see the studio mostly full. All cycles faced a mirrored wall where a platform with room for two bikes faced us, front center stage. The lights dimmed as instructor Beth and co instructor Dr. Tommy welcomed everyone with intros and synchronous stretching. And that’s when the atmosphere changed.

It began fast, fun and sweaty. Hey, this is all the awesome of bike riding without exhaust fumes and traffic lights. I’m really digging it. The electrifying playlist chosen by Tommy kept us excited about moving to upbeat rhythms that gave the event a dance club feel. What started out as festive turned into challenging and hot as the microphone amplified voice encouraged ‘Right, Left, Right, Left, Push, Push fast as you can. Harder!’

Momentum increased as the locked in spin shoes allowed for pulling up with one leg as the other pushed against the suggested resistance in a constant circuit of pressing past personal boundaries. Legs burning, tummy tucked in, I worked to coordinate lifting off the saddle in a push up formation against the towel covered handle bars. And then again boosting out of the seat, pumping legs, with one arm raised in the air in upward reaching movements.

Arms and back agreed with buns that spin is a legitimate work out much more comprehensive than the hill hiking I had been doing to make myself think I was fit. I was a fool. This kicks hiking’s ass!

It was easy to get caught up in the wave of determination. The efforts of those around me, the voice of the instructor and the beats of the music; familiar, lyrical words enveloped me in the dimmed room, encouraging to push past the burn and give more of myself. There was grunting and sweat. Pressing up and back so hard the bike rocked on the floor. Warrior sounds from a couple bikes over. This spin thing is no joke! Legs finally got over the initial shock as fire turned to warmth. Then what was beautiful discomfort became a rush of adrenaline and heavenly endorphins. I felt like a candle lit from within. This must be the magic glow that people who love spin talk about.

The pace increased as we moved through a series of stand n’ tap our buns on the saddle, up and down motions that made me aware of a whole different muscle group hiking totally missed. As the spinning slowed pace, we focused on arms. No body part shall be neglected!  As I went through the movements, I reasoned how odd it would look if all these lovely legs, buns, backs and tummies were accompanied by spindly arms and shoulders. Then promptly redoubled efforts to match the work I put into my lower half moments ago.

And then, almost abruptly, the class was over.

We did it! There was an odd sensation of time warp as somehow 45 minutes felt like 15. I high fived the steamy gentleman beside me and twisted my shoe out of the lock to hook my leg over the arm rests for the final blissful class cool down stretch.

We were thanked for our participation and the raffle winner announced. I took my first steps on legs that felt wobbly at first, finding solid ground again with feet that had grown accustomed to pedaling.

Looking around I could see these were not the same fresh participants swagged out in glow necklaces, glasses, and headgear that had started this adventure. We were a mass of smiling, red cheeked, champions.

The Rush Studio CCFA Fundraiser
After the fun. Can you tell we’re glowing?
The Rush Studio CCFA Fundraiser
And with the black lights and glow swag. How fun was this ?!

It was an empowering, affirming, CCFA goal centered team effort. I was so honored to have been a part of it.

And here’s the cool thing about it all. Spin lover or no, this was an example of highlighting your passions and living your happiest in a way that helps others. Dr. Tommy Yen used his love of cycling to support his love for the IBD community. Team Yen raised $300.00 that day for the CCFA, with more financial contributions added later.

Thank you to Dr. Tommy Yen. Way to go with all your awesome!
Instructor Beth Abramowitz of The Rush for leading all the fun.  You are way cooler than Wikipedia said you would be.
To my new IBD friend Ryan Hill. It was so nice to meet you.
And to all the other participants for spinning, contributing, and making the day a great one.

<3 Christy

CCFA Take Steps San Diego~ De Anza Cove

Last year I went to my first Take Steps for Crohn’s & Colitis event. I was invited by my super cool Gastro and thought it sounded like a fun thing to try.  Why not?

Last years team pic.
Last years team pic.

In fact it was so great that I immediately began looking forward to going again.

The first thing I did was look for the sign in booth.  Before I even got to the table I met a super nice lady who saw my Ask Me shirt and we got to chatting.  She excitedly told me about her Ostomy experience and shared her enthusiasm for upcoming treatments.  How about that for an awesome welcome?!  I love my IBD community.

Anyhoo, I got signed in and went straight for the booths.  I didn’t spend enough time investigating them last year and felt like I missed out.  So off I went.

*Going for big pics so you can see all the goodness as I walk you through a photo tour of the event.*

The first booth was for a pharmaceutical company.

Ferring Pharmaceuticals.  Their motto is 'Medicine on the body's own terms'.  They work to create individualized treatments = less side effects.  My hope is in time this will be available to everyone at an affordable cost.  How cool would that be.
Ferring Pharmaceuticals.

Their motto is ‘Medicine on the body’s own terms’. They work to create individualized treatments with less side effects. My hope is in time this will be available to everyone at an affordable cost. How cool would that be?  That’s their goal as well.  I can’t wait to see it.

The next booth was MotherToBaby.  They offer support for women on IBD controlling medications who are looking towards pregnancy and breast feeding.  There are legitimate concerns about safety for mother and child when taking meds.  MotherToBaby helps answer those important questions.

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Eight years ago when I was breastfeeding this information wasn’t available. Women today have the tools to make educated decisions. I like that.
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MotherToBaby card with more information.

 

Then there was the MPA Event Graphics booth with the bright sign that drew me in.

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MPA Event Graphics creates beautiful signage.  And they had the best team shirts ever!  So if you need a stunning visual and a company that understands IBDers, this is where you want to go first.

 

Next there was Coastal Gastroenterology, a local Gastro clinic with a super joyful group of people.

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Coastal Gastroenterology is a local gastro clinic.  Nice to see so many options out there for people to receive care.

 

There were larger medical groups as well.  UC San Diego has an IBD Center with a focus on patient education and empowerment.

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UC San Diego is a local teaching hospital. They have a large Gastro center where they offer help for every aspect of care.

 

There were some drug reps.

This one is for CIMZIA.  They have a nifty delivery system, after initial dosing it can be done by the IBDer in their own home.  There’s help available for those who cannot inject themselves.  I was most impressed by the pro human side of it.  Trying to really make it as easy and inobtrusive in a persons life as possible, while still providing a high level of care.  The rep was very good.

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This booth was for REMICADE but the gentleman never really pushed or pressed that Remicade is the very best drug. (Some drug companies do that silly stuff ~ can you believe it?!)  He encouraged a conversation to happen between the IBDer and their gastro.  (Which I respect)  What he did highlight was the cost assistance program they offer.  So of course I grabbed a packet to show you, my Sweethearts.  He also stressed the fact that every costly med out there has an affordability program.  The IBDer just needs to know to ask.

Now you know.

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Front side showing three options available.
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Back side giving contact information.

Affordability Rocks!

 

Loved talking to the researchers.  So passionate, intelligent and personable.  Join research or take part in a study if you can.  Researchers and scientists power to understand IBD and find a cure lies in our willingness to participate.  We are the key to helping our own future.

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Interested in participating in research studies? This is a group that does just that.

 

Take Steps CCFA SWAG.  Woo Hoo!  Totally filling this bag with a snack, sunscreen and a towel then heading to my favorite beach.

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Then came time for the fund raising announcements and listening to the stories of some pretty remarkable IBDers.

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This years announcer Mike did a great job.  Can you see me in the front row in my Great Bowel Movement ‘Ask Me’ t-shirt?  I had the best view. 😉

Mikes presentation on stage was positive, informative and kept the ball rolling towards the true purpose of the event.  The fearless announcer was both entertaining and endearing as he highlighted the efforts of those in the community.  A job well done.

 

After the stage presentation it was time for the walk.  This is where I got to visit with all the people. My very favorite part!  Everyone I spoke to was an example of inspiration, strength, courage and love.  I love my IBD community!

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This sweet mother, daughter duo wearing their Crohn’s fighting shirts made by MPA Event Graphics. Such positive, uplifting and hopeful women in love with their family.

More visiting…

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Chatting with the photographer. He was at last years event and is super nice.

 

Before you knew it the event was wrapping up.

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All good things that start must come to and end.

Thank you CCFA for the Take Steps experience.  My family and I look forward to participating next year.